NEMO is a recently established charity that works with the families and sufferers of the rare genetic disorder Incontinentia Pigmenti (IP) throughout the UK and internationally. Our aim is to promote and protect the physical and mental health of IP sufferers through the provision of financial assistance, education, and practical advice, and to provide and assist in the provision of facilities for these families for recreation and leisure time occupations including all aspects of the arts. We would like to also advance the education of the general public and medical profession in all areas relating to Incontinentia Pigmenti (IP).
With this website NEMO would like to link sufferers of IP with other sufferers and their families and to provide information and links of services and useful organisations. We are still in the process of building this website so information will be changing frequently. If you have any information about IP that you would like to share with us, you can send an email to firstname.lastname@example.org or you can add a comment by clicking on the comments link at the bottom of the page.
NEMO would like to thank everyone for their support in us getting this far and we hope that you will continue to support us in the futre.